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#actuallyautistic

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César Pose

Today I woke up with an avalanche of thoughts about my relationship with social media. I always feel like there are things that unnecessarily disturb my mind, and it's something I need to manage intelligently so as not to overload my brain with stress, something that has already cost me dearly in previous years.
While it's been helpful and interesting to read and observe autistic people on social media, things get tiresome when "autism" starts to get mixed up with other topics that don't interest me or even disgust me. And it's not that I'm afraid of anyone; rather, I take care not to end up becoming aggressive and intolerant. This isn't because I care about people; in fact, I care very little about them, as I don't have the hypocritical political correctness that most people on social media have. Life is what it is; there's no need to sugarcoat or romanticize it. No one is going to change or improve this shitty world we live in, and I have no intention of making any effort in that regard.
If you want, you can call it the "cognitive rigidity" of autism, or that I'm intolerant, or perhaps you'd rather call me a "fascist," as many people call anything or anyone they don't like or who doesn't kiss their ass and support their absurd beliefs. I don't care; I don't need anyone to love me or approve of my existence.
Specifically, I've decided to stop following the autism groups I used to follow, which were interesting but were getting tiresome with absurd people. I'll continue, perhaps, some hashtags or specific people who don't rave about absurd ideologies or beliefs and share interesting experiences. You can't imagine how difficult it is sometimes to feel like I'm miserably wasting my time reading the childish arguments of gray-haired adults.
I'm autistic, not very sociable, not very tolerant, and I am not, nor will I ever be, an activist or militant for any unconscious gang.
Bye... 👋

:Fire_Autism:
#autism #autistic #actuallyautistic

*
revolutionary girl erin

Fresh new instance, fresh new #introduction time.

I'm Erin, yet another autistic transgender anarchist from so-called Portland, Oregon. I used to have fancy tech jobs with titles like "Lead Full-Stack Software Engineer" until I burnt out, got laid off, and discovered that the tech industry was done with me. Nowadays I survive on a very part-time gig as a general technologist and some freelance tech work when I can find it. My part-time gig is unionized through the IWW, of which I am a proud member. I've been on fedi under various names and handles since GNU Social was the cool new thing.

My special interests include Cybersecurity, Casio watches, Dungeons & Dragons, Final Fantasy XIV, the Indieweb, Linux, old ThinkPads, XMPP, Yuri Anime and Manga, and stuffed sharks.

formerly @kvuzet

Here's a big list of tags:
#ActuallyAutistic #Anarchism #Blahaj #CyberSecurity #DnD #FFXIV #F91W #Frontend #Indieweb #InfoSec #IWW #Linux #Queer #RSS #SDF #ThinkPad #Tech #Trans #Vegan #WebDev #XMPP #Yuri

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🔥Cassandra🔥

Edit: I have signed a lease on a place that seems pretty close to ideal! So many friends within a 2.5 km radius! 🎉

——

I'm looking for an apartment in #Ottawa and I would like to ask the community for help.

I'm an excellent tenant. I've never missed a rent payment. I’m quite quiet, except I do on occasion like to sing.

My absolutely ideal setup would be:
- in Centretown / Little Italy / Hintonburg (within walking distance of many friends),
- tenant control over HVAC (including a/c, because I overheat),
- dishwasher and microwave and space for more kitchen appliances (so I can cook and share),
- two bedrooms (so I can host people on occasion, e.g. if there is a power outage elsewhere).

If we're getting crazy fanciful, I would love to have access to a tiny garden and space for a solar battery.

The reason I'm asking the community for help is because I'm having a lot of trouble with corporate landlords. Many of them, experienced tenants advise against. Some landlords say they have available units but refuse to answer phone calls or emails. Some may be perfectly nice but my life circumstances don't fit within their corporate forms and therefore I'm out of luck. (This is a recurring #ActuallyAutistic experience.)

I would love to find a long-term rental from someone who appreciates a reliable if somewhat unusual tenant.

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SecondUniverse

I just migrated here from SecondUniverse@neurodifferent.me, so as a quick introduction... I am a trans woman. I transitioned back in the nineties before the world declared war on us. I was diagnosed with autism in my fifties, and more recently I have self diagnosed myself as having CPTSD. I post about astronomy, game development, trans issues, mental health, autism, and writing. #trans #actuallyAutistic #writing #mentalHealth #gameDev

Update: I have now learned, at age 55, I am intersex. I just about remember the "corrective" surgery that was done when I was was 3. #intersex

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Nuclear Oatmeal

<STREEEEEETCH>

It's good to see me, isn't it? This is my new #introduction to my new locale. I get more characters to type. YAY! I don't always talk a lot, but I dislike having something like 13 /🧵 when I can put it all in one LOOONG message.

I used to be on the bird site, and the path to Nuclear Oatmeal is just one that you had to have been there, and you probably weren't, so it's just going to be a mystery. Not a very intriguing mystery, but a definable one, nonetheless.

Ok, so bullet points, because why not?

* Anxiety Disorder. Meds help quite a bit. Not 100%, but meh.
* #ActuallyAutistic, and rocking it.
* Computer Geek, and game player
* Cishet and a spouse, along with being parent of 2 trans kids. I will cut you if you think about messing with them.

I follow @Alice . She's cool.

I ALSO FOLLOW @LRRRonEarth . HE WANTS TO DESTROY HUMANITY. I DON'T THINK THAT'S COOL!

IT MIGHT BE NEEDED THOUGH.

Not much else to put up here, but I may surprise you tomorrow. Probably not.

Curious Magpie

The wonderful woman who helps me with housework has an autistic teenage daughter. This girl is trying so hard to navigate a very confusing world. The mom is supportive while the public school is actively not supportive.

I know I feel so supported by the adult community on here - does anyone know of safe online autistic communities for teens?
@actuallyautistic #actuallyautistic

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Hans-Cees 🌳🌳🤢🦋🐈🐈🍋🍋🐝🐜

Introduction time, since new server.
Ecologist, did some university environmental stuff, then #memetics policy analysis (6 years)
No PhD (#burnout) then turned to IT.
Ciso #infosec now for a Dutch #youthcare organization
Found out I'm #autistic at age 53,, #actuallyAutistic. 2 kids, married with photographer
Interested in many many things, but deeply into #trees # nature #insects #ecology #memes #neoliberalism (as a #memeplex) Also like to use #python to make cool things to fill @bomengidsnl

Pete Orrall

#UnitedHealth is positively #fucking #EVIL for intentionally denying #critical care and services to autistic #children for #profit. They know *exactly* what they are doing.

This damning #ProPublica article highlights UH's strategy via secret playbook to deny children care. Absolutely eye-opening.

As an #actuallyautistic #human who #parents an #autistic #child, this is horrifying and utterly reprehensible.

propublica.org/article/unitedh

ProPublicaUnitedHealth Is Strategically Limiting Access to Critical Treatment for Kids With Autism
More from ProPublica
#news#healthinsurance#unitedstates
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Patrick Perdue

Greetings. New instance, new #introduction
I'm Patrick, a 40-something, totally blind, hard-of-hearing, #ActuallyAutistic man from New York City, born and raised in North Carolina.
I once had ambitions to play music professionally, but got distracted as a teenager by the actual production/engineering side of music and audio. As a result of all that, I can play several instruments, none of them particularly well. Buttons and knobs are my thing. Analog synthesizers, audio production techniques, outboard gear, microphones, headphones, monitors... Yep, I can talk about that stuff all day long, though all my studio gear is currently inaccessible to me at this time.

I have an I.T. background, but when those prospects dried up, I spent over a decade as a freelance podcast editor and general creative production guy. I still occasionally do those sorts of gigs, but not to the extent I once did.

I received my amateur radio license when I was nine years old. Radio is still magical to me. Though I was out of the hobby for a while, as my hearing continued, and still continues to get worse, making it harder for me to do some of the other things I enjoy, I've gotten back into it again.
I run a multi-mode RoIP network for blind ops, called, appropriately enough, the Blind Hams Network.
You can find my amateur radio account at @N2DYI if that sort of thing interests you. I pretty much only post ham radio related stuff there.

I also run @NoiseBox, a bot that posts a random sound effect every hour.

I have been suicidal in the past. Depression still hits like a ton of bricks. I often post whatever comes across my mind. Those things are sometimes not particularly filtered. You have been warned!

I'm migrating from my old account, @BorrisInABox@mindly.social, but keeping that account as a backup rather than aliasing it, at least for the time being.

There are probably many other things I could say, but I'll leave it here, and let whatever happens speak for itself.

*
Lanie Carmelo

Hello, caneandable.social! I'm Lanie, a 33-year-old #Christian woman from Pipe Creek, TX. I'm #aroace, #TotallyBlind, #ActuallyAutistic, and living with multiple #ChronicIllnesses. I've just moved over from tweesecake.social, so I'm excited to meet new people and reconnect with familiar faces!

A bit about me:
- I live with my mom and stepdad, who are my caregivers
- I have a Miniature Pinscher named Squeaker
- Currently studying programming on freeCodeCamp.org and codecademy.com and Braille proofreading through the NFB
- I work as a usability tester and aspire to become an #accessibility consultant
- My goal is to create a nonprofit for people with multiple #disabilities

My interests include:
- #Gaming (especially accessible games like incremental/idle games, word games, puzzles, RPGs, roguelikes, and MUDs)
- #Technology and #Cybersecurity
- #RareDiseases and #DisabilityRights
- Reading (sci-fi, fantasy, thrillers, mysteries, and nonfiction)
- Swimming
- Gardening (planning to start soon!)

I'm passionate about #accessibility and creating a more inclusive digital world. I run online groups for people with multiple disabilities and am active in the #DisabilityCommunity.

Some of my #health conditions include occipital neuralgia, intracranial hypertension, Empty Sella Syndrome, fibromyalgia, hidradenitis suppurativa, GERD, gastroparesis, IBS, sleep apnea, migraines, and non-24-hour sleep-wake disorder.

I use various devices to navigate the digital world, including a Windows computer, iPhone, Android tablet, Fire TV, Echo Dot, Apple Watch, wireless headphones, and a Braille display. #AssistiveTechnology

I'm always eager to connect with others who share similar experiences or interests. Feel free to reach out, especially if you're into #AccessibleTech, #DisabilityAdvocacy, or if you just want to chat about books, games, or life with multiple disabilities!

#Introduction#NewHere#BlindMastodon
Kevin Davy

@actuallyautistic

For all those who might be interested. I thought I might share some of the things I learnt whilst realising I was autistic. These may, or may not, apply to you, but I hope someone finds something helpful.

I started upon the path of realising I was autistic by taking one of the tests. But a single test is only indicative. Taking a number of the tests and repeating the results, becomes, of course, ever more indicative. But, in a sense, it is still not proof. Sooner, or later, you have to do the work and look into it properly. The best sources of information are your fellow autistic's and there are numerous excellent books and websites, YouTubers and places like this, where such information can be found.

But, one thing you must always bear in mind, is that there is no such thing as a one size fits all, autism. We are all different from each other, even more so than non-autistics (allistics) tend to be. Think of it like a pick and mix bar. All the various traits and the manifestations of those traits and we all come away from that bar with our own individual bag of goodies. So it's OK to not see yourself in how others describe themselves. It's OK not to experience the difficulties that others might, or even the way that they may see some things as strengths or positives, when to you, they are not. This is normal.

It's also important to bear in mind that we can often not see traits within ourselves, not at first anyway. Sometimes it's because we see them as normal. Perhaps, we've picked them up from parents, or siblings, without realising that they may have been just as much in the dark about being autistic as you were. Sometimes it's because we've become too adept at not seeing them, at masking our own awareness of them from ourselves. It can also be that we don't think we have them, because we're not affected by them. This can often be because, without realising it, we've either carefully arranged our lives not to be, or have gone to great lengths to create the necessary accommodations that enable us to deal with them and just think of those processes as a normal part of our lives now, without taking the step back and thinking about why they are.

The fact that we all can be so different from one another, is also why we sometimes struggle to see ourselves in the official criteria for autism as outlined in the diagnostic manuals. The thing to remember about these, is that they are almost entirely the product of allistics looking in, rather than the experiences of actual autistics. They can also seem too deficit based and you might struggle to see yourselves fitting them because of that. Mostly because as adults we've spent a long time learning how to cope with the problems and also how to avoid them. But, the thing to remember about this, is that an official diagnosis is far more to do with determining how badly you might be affected by being autistic, than it is about whether you are autistic. And, unfortunately, the less experienced an assessor is in dealing with adults, the more this is likely to be the case.

For this reason and many others, self-diagnosis is considered as acceptable as an official-diagnosis to the vast majority of autistics. And, I suppose, this is the final point I want to make. It's easy to fall into the trap of thinking that this is something that has to be dealt with by the medical community. That it's something that should be diagnosed by a doctor and this is the appropriate route to follow. That only professionals can help you and that they will be the source of any information and guidance you need. Because, after all, for so much else it would be the route and I'm not saying it's not. For many reasons, getting an official diagnosis is often the right path for someone to follow. What I'm saying is that after doing the work, after taking the time to learn and process it all and having come to the point of accepting and realising that you are autistic, that perhaps taking the next step of trying to get an official diagnosis, is no longer required, or needed.

#Autism
#ActuallyAutistic

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